Monday, July 26, 2010

Waiting

Waiting....There has been a whole lot of it going on here in our lives. Our oldest son Christopher is having some problems lately. On July 16th he started to leak fluid from his ear. ( he did not tell me this until Monday morning). The last time we had this is when he was 6 yrs old... it turned out to be spinal fluid, and he had to have head surgery to fix it. I took him to the pediatrician and they treated him for swimmers ear with the recommendation if the leak gets worse come back... needless to say it became worse and by Thursday we were back to the pediatrician. This time I called the doctor who fixed his leak the last time. We saw him Friday he admitted Christopher and scheduled surgery for Saturday morning. Not exactly the weekend I had planned. How quickly we all feel to our knees in prayer. Surgery lasted about 6 hours. He was not a "typical" case. The doctor, whose specialty is repairing these types of leaks, said he has never seen one like this. He is stumped. Why is it happening? We do not know. They are thinking he has high CFS pressure. When they measured the pressure, after leaking a good bit of fluid for a week, his pressures were in the high normals. The repair went well...we stayed in the neurological ICU and have just been transferred to the neurological step down unit. They were very concerned about hearing loss. The neurosurgeon said that the signal for hearing stopped during surgery then started somehow towards the end. I know how....thank you God and everyone who was praying!!!!!! Christopher says he can hear from his ear. The facial nerve that controls his facial movement is not working. I believe God can change this too. Christopher is upset that he has lost movement of half his face. I think I would be very upset if it were me. I keep telling Christopher God is in control...let's wait and see what He can do. Please pray for Christopher, this is a lot of stuff to handle for a 15 year old. Sorry for the length of this post... it helps me to put words to the many things happening. Please continue to lift Christopher up in prayer. He has an extensive tough road ahead of him... also please pray that our Heavenly Father gives the Doctors wisdom and knowledge of what to do for Christopher. We are looking at a future of many spinal taps and possibly a spinal shunt. As God has proven over and over He has a plan and a future for Christopher...He is faithful....He loves this child more than I do... He is in control! Needless to say I miss my other kiddos very much. They have been staying with my mom. We will have to do something about all the spoiling. I have been talking to Emenet and Nick by phone a couple of times a day. Now that we are in step down maybe they can come for a visit. Off to do some more waiting...and praying...and waiting....and praying....

4 comments:

  1. Wow, so much to pray for with Christopher. I am starting now!!! and for mom too :) Love you guys.
    Abigail

    ReplyDelete
  2. We are praying like crazy for all of you. Praying for Christopher to have ears that hear God speaking words of hope and peace over him right now. God is moving and healing Christopher. xoxo CYBER HUG xoxox
    Love you all, The Roots

    ReplyDelete
  3. HI!! I grew up in Pittsburgh, too! yay! Go Steelers!!

    Thanks for stopping by my blog while I was in Africa, if you want more specific info about Korah sponsorship, can you email me at pajohiltATgmailDOTcom

    ReplyDelete
  4. Christopher,
    I am praying for you too! Praying for healing, peace, and also that you find something FUN to do while you're in the hospital!
    Praying for you and your whole family,
    Julie

    ReplyDelete